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Real Patients: Parents Perspective


Real Patient
Nicholas was six years old when he was diagnosed with asthma. And he is twelve now. So he has had it for the last six years.

When I heard my son’s diagnosis, it took us by surprise. Because I didn’t have it at the time. So, you know, we were wondering. We were trying to go back to our families, who had asthma in our family? Nobody had asthma in our family. But what it was is, he was allergic to a lot of stuff. And that’s what triggered his asthma. So, you know, it took us by surprise.

Only because now we have to adjust our lifestyle to ensure that he’s not affected by his asthma. It’s unfortunate. School field trips he can’t go on. Summer camps he can’t go on because he’s allergic to different trees, the grass, you know, if he gets a cut and something gets in it, in that cut, that could trigger his asthma. And, you know, it was severe.

In the morning my son would have to take a steroid, his inhaled steroid. And then while he’s at school, prior to going out for recess, he would have to go to the nurse, take two puffs of his inhaler, his rescue inhaler, and then he can go out and play. And then when he comes home he takes another two puffs of inhaler. Only because it’s been a gap since he’s had his inhaler to the time he comes home. And then at night, prior to going to bed, he has to take two puffs of a steroid inhaler as well prior to going to bed.

There were incidents where we had to give him the nebulizer. You know, he had to take, it was so severe to where he couldn’t really breathe. We heard his wheezing, his gasping for air. And I know what it’s like, you know, as he got older and I ended up getting diagnosed with asthma, you know, that’s when I knew that his was more complicated than mine, being that he had the, he needed the nebulizer to stabilize his breathing.

What I have gone through makes, it gives me a better insight of how I can help my son, being that he has asthma. I make sure he takes his, you know, medication in the morning, medication at night. He always has a rescue inhaler with you, with him. When we’re together as a family, my wife has both of our rescue inhalers in her purse. You know, because we don’t carry it so she carries it for us.

It is, it is very heartbreaking as a parent to know your child is going to go through this. Not knowing if they would outgrow it or if it’s going to be with my child for the rest of his life and now his life is, lifestyles going to be effected by it not being able to do outdoor activities like, you know, most kids want to do.